Quality of life of Maltese Patients Research

Project funded by VOPs

  • European statistics indicate that approximately 20 percent of Europe’s adult population, more than 80 million people, suffer from chronic pain, meaning pain which occurs repeatedly over a period of three months or longer. Some 9 percent of Europeans experience pain every day. Chronic pain accounts for 500 million sick days a year and is the most frequent cause of early retirement and incapacity for work. The total direct and indirect costs of chronic pain amount to an estimated 1.5 to 3 percent of total European GDP.
  • The burden on Maltese society in real terms still needs to be studied, but based on the results it is desired that this collaboration will lead to the development of policies and practices for the benefit of the Maltese society, possibly leading to increased momentum on the continent.

  • This project has been funded through the Voluntary Organisations Project Scheme managed by the Malta Council for the Voluntary Sector on behalf of Parliamentary Secretary for Youth, Sport and Voluntary Organisations.

     

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    Theme: Globally Empowered Patients: Power through Knowledge.

    The Chronic Pain Project

    Relieving pain for Chronic Pain patients Project

    Hundred Cities against Pain

     

     

    7th OCTOBER 2017

    • The Malta Health Network has joined the initiative “100 cities against pain” led by ISAL Foundation for the fifth year. The campaign is now spread over most of the Italian territory and spans from Canada to Australia, many countries within the EU and all the way to Columbia and Dubai.
    • The project “100 cities against pain” proposes:
      – Sensitize and inform people about pain
      – Recognize chronic pain as a preventable and treatable disease
      – Support health care efforts to prevent and manage chronic pain
      – Make medications refundable and diagnosis and care instruments available
      – Promote fund raising for research
      – Facilitate a specialist formative culture
      – Involve media in pain fighting
    • The aims of the campaign are mainly to raise the awareness of the general public that Pain is real and those who suffer in silent are encouraged to come forward and seek adequate help and treatment. Secondly there is a felt need of more awareness and training amongst medical and health care professionals to recognise and treat pain adequately.
    • A way of supporting the campaign is by taking a selfie with the words I’m against Pain/ Jien kontra l-Uġigħ. This can then be posted on www.facebook.com/isalpain or www.facebook.com/MaltaHealthNetwork.

    EUPATI

    The European Patients’ Academy (EUPATI)

    • The European Patients’ Academy (EUPATI) is a pan-European project implemented as a public-private partnership by a collaborative multi-stakeholder consortium from the pharmaceutical industry, academia, not-for-profit, and patient organisations.
    • EUPATI offers a wide range of learning and training material. An overview can be viewed In EUPATI.  Articles in English can be found on Toolbox English or visit EUPATI official site which includes the EUPATI Toolbox, EUPATI Courses, EUPATI Publications and EUPATI webinars AND MUCH MORE!

    • The project was launched in Malta in early 2014. Material from the EUPATI toolbox is available in Maltese TOOLBOX MALTI

    The Patient Ambassadors Programme

    Do you or someone you care about have a condition that you wish more people understood? Have you had a good experience with a doctor or nurse that you want to share to improve other people’s care? Have you heard about a change in policy or law that you think is wrong or unfair?

    EPAP (the European Patient Ambassador Programme)

    • This online programme introduces you to some of the skills and knowledge you may need to represent yourself and others successfully. EPAP is a self-learning programme providing patients and carers with essential skills and knowledge needed to interact with healthcare professionals, policymakers, researchers and journalists.
    • This programme has been developed by European Lung Foundation (ELF). The programme is suitable to anyone living with any chronic condition. This is why EPAP is for everyone, regardless of the condition they are affected by, and regardless of which world region they live and work in.

      Sign up to EPAP

    19th April the EUROPEAN PATIENTS’ RIGHTS DAY

    • Malta Health Network has been working on the promotion of Patients’ Rights since 2008 when the first awareness events were held to promote the European Charter for Patients’ Rights.  This work was constantly supported and guided through our partners Active Citizenship Network.

       

    • Extensive history and work carried out by ACN and it’s partners throughout the years can be accessed on Patients rights events ACN & Partners

      Whilst these charters are promoted on a European Level by various patient organisations they do not have any legal value so far apart from legislation in some countries.

    • Following the Health Act Malta 2013 which mentions a Patient Charter the Ministry for Health held a consultation process and proposed the Maltese Charter 2016 Ic-Charter tal-Pazjent/ Patients’ Charter . To date this charter is not yet active.
    • Further more in collaboration with Active Citizenship Network. MHN has actively participated in the promotion of the Patients’ Rights in the Cross border directive. Information leaflets can be accessed on PATIENTS HAVE NO BORDERS MALTI or PATIENTS HAVE NO BORDERS  (english).

      European Charter of Patients’ rights video

      More details can be accessed on Borders Project ACN

    Societal Impact of Pain Malta
    (SIP Malta)

    Maltese organisations agree to join forces to set up Societal Impact of Pain Malta (SIP, Malta) July 2016

    • Representatives from the Maltese European Parliamentarians’ office, Maltese Parliament, Ministry of Health, Service providers, professionals, patients and citizens’ organisations have agreed to work together to address the common theme of pain. This decision was taken during a stakeholders meeting held on July 8 2016.
    • The diverse audience at the meeting was presented with the work carried out over the past seven years of SIP, but focused mostly on the recommendations agreed upon during the 2016 SIP Symposium which took place in Brussels on the 23-24 May. Participants discussed the socioeconomic implications of pain and policy solutions to this burden both for the individual and society.
    • The objectives of SIP Malta are to raise awareness of the relevance of the impact that pain has on our societies, health and economic systems; develop and foster national and European-wide policy strategies and activities for improved pain care, and encourage coordination between the various stakeholders.
    • For further information see SIP Malta Press Release.

      Visit SIP Malta Facebook

      View Pain Roadmap for Malta produced in collaboration with SIP Malta, the Malta Health Network and the No Pain Foundation.