- This event has passed.
Launch of Rare disease campaign
1 February, 11:00 am - 3 March, 11:30 amFree
As Malta Health Network we have been invited by the Malta Alliance for Rare Diseases for the launching of their 2022 campaign. During this launch Profs. Robert Xuereb, Hon. Dr.Stephen Spiteri and Dr.Chris Barbara where present and they spoke about the importance of raising more awareness about rare diseases.
This event was held under the auspices of The Parliament Speaker Dr.Anglu Farrugia.
The event was held beginning of February 2022 at The Parliament Foire.
The President of the National Alliance, Ms.Muscat called for local policy makers to support the Alliance’s call for a National Action Plan on rare diseases based on the European Action Plan that is currently being advocated for by EURORDIS of which the Alliance is an active member.
A National Action Plan will work towards three goals –
1. to ensure that people stop losing their lives too young from rare diseases
2. to improve the quality of life of people living with a rare disease
3. to ensure that Europe and Malta as its member leads in rare disease innovation.
The National Alliance for Rare Diseases Support Malta will continue to ensure that its members will have a voice in our society and across the world and to make sure that the United Nations sustainability goals are fulfilled. Rare Diseases Malta will tonight participate in the EURORDIS Black Pearl Event commemorating this cause.